Actually, the menu is pretty much the same too. But we have to measure out the amount of carbs she is getting and make sure she eats all of them and no more than what we have given her. She is then allowed to eat whatever "extras" she wants to fill the rest of her tummy up. Extras are things are meats/cheeses/veggies/most fats/etc. Kaiah's new favorite food is the cheese stick. At the moment, it's her favorite snack.
The schedule is something I have wanted to do anyway. With 4 kids it's helpful to be on a set schedule. Kaiah's looks like this:
7:30 am wake up
8:00 am check glucose (finger stick), insulin shot, and eat breakfast (which must be done within 30 minutes)
10:00 am snack
12:30 pm finger stick and lunch
3:00 pm snack
5:30 pm finger stick, insulin shot and dinner
8:00 pm finger stick and snack
2:00 am finger stick
Another change is that we have to carry around a bag of emergency supplies when we go anywhere. It contains glucose tabs, capri suns, her testing kit, and a shot of glucagon (which is intramuscular) for if she becomes unconscious. I have already forgotten to take it twice! Well, routines are hard to get perfect all the time until they are actually routines!
Cliff is more careful about measuring every single carbohydrate that we put in front of her. I kind of do it the way they taught us. Generally assigning a carbohydrate exchange to each 15 grams of carbs. She gets 5 exchanges for breakfast, 3 for lunch and 4 for dinner. We have kept this pretty tightly and her numbers have been rewarding. The CBG (blood sugars) are pretty consistent around 120-150. They want the goal to be 80-180. We have to call in to the endocrinologists every day to report the values and get the insulin doses for the evening and next morning.
I'm encouraged on many fronts. Type 1 Diabetes in Kaiah appears to be very manageable. She tolerates the finger pokes and shots really well... no tears at all! Also, I've had many chances to speak with people about God's sovereignty in our lives and the peace that He gives. He knows what's best for us and will never give us more than we can handle. And, even though right now this is a disease that has no cure, a lot of money is going into it to either vaccinate against it or find a cure. Who knows? Christ could come back before that even and that would be the best cure of all! A completely changed and perfect body! We'll take it!
The rest of the fam has been doing pretty well. Mason thinks he is ill a lot of the time, but is so dramatic about it, I have to force myself not to smile. Yesterday he said, "Mama, I think something might be wrong with me. I feel weird every time I play basketball or ride my bike. It's like an active weirdness. " (And then in dramatic fashion) he starts to slowly fall to the couch and says, "When I dribble the ball, I just stop and get really tired...." I tell him I will have to be watching out for more signs of this "active weirdness" and he thanks me. He thinks he wants all the finger pokes and insulin shots that Kaiah has. I think it's strange for him that Kaiah is doing something that he has never done. He always does things first as the oldest child. Now she is starting something new without him.
We're trying to not make any of this a big deal while still encouraging Kaiah that she's doing a great job. She has been. She's a real trooper. We're so thankful for all of our wonderful kids.... and since I just started this blog, soon I will try to work on info about all of them!
Thankful,
Becky
PS - Cambria does not have Leukemia! Praising God for that... and many other things!
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